Learning to walk, talk, eat with utensils, run and play are important skills we acquire during childhood. Unfortunately, for some children, they are not always learned with ease. When a child does experience significant difficulty which impacts the acquisition of many movement skills and persists over an extended period of time, they are often referred to as having motor planning difficulties, motor dyspraxia, and sometimes a condition medically diagnosed as Developmental Coordination Disorder (DCD).
As a parent or guardian of a child impacted by prolonged movement difficulties, you have firsthand experience of the many challenges, including access to therapy, educational support, along with the physical, mental and financial impacts on your child and family. Unfortunately, awareness of such impacts is currently limited in the medical, education, and government systems in the USA. This needs to change and to do this, we need your help.
We invite you to participate in this population-based survey if you have a children aged 5-18 years who has persistent movement difficulties not associated with another movement-related condition (e.g., cerebral palsy).
This project has been developed by Australian researchers together with Developmental Coordination Disorder Australia to collect vital evidence to demonstrate the impact of the persistent movement-related difficulties known as DCD. Their results highlight all the issues in their country. Now, we are implementing the same study in the United States. In doing so, we hope to increase awareness, initiate action to provide better support services to families, schools, and medical centers, and to bring about change in our community's approach.
The survey has a series of questions to answer and should take ~30 minutes to complete. Participation in this survey is entirely voluntary. In completing the survey, your identity will remain anonymous.
The survey might ask questions about topics that at times you may find sensitive. But this information is very important for us to truly understand your experience. If at any point you do not wish to continue with the survey, you can stop immediately.
We kindly ask that you take your time responding to the questions and to please forward this questionnaire to any other families in the US you know impacted by similar movement-related difficulties. Thank you in advance for your participation.
Details of the survey’s principal investigator are included below, should you wish to contact them concerning any aspect of the survey:
Dr. Priscila Tamplain
University of Texas at Arlington
Approval to conduct this research has been provided by the University of Western Australia (RA/4/20/1045), in accordance with its ethics review and approval procedures. Any person considering participation in this research project, or agreeing to participate, may raise any questions or issues with the researchers at any time. In addition, any person not satisfied with the response of researchers may raise ethics issues or concerns and may make any complaints about this research project by contacting the Human Ethics Office at the University of Western Australia on (08) 6488 3703 or by emailing to firstname.lastname@example.org. All research participants are entitled to retain a copy of any Participant Information Form and/or Participant Consent Form relating to this research project.